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Amy Stockwell Mercer

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Amy Stockwell Mercer

Tag Archives: cost

The Cost of Diabetes (making sense of it all)

08 Thursday Dec 2011

Posted by alsmercer in cost, diabetes, Uncategorized

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Chronic Illness, cost, diabetes, health insurance, living well with illness, type 1 diabetes

The pile of medical bills next to my computer is out of control, and it’s that time of year again, to re-sign for our health insurance. My husband has heard through the rumor mill that his employers are raising the cost of our insurance, which for a family of five, could cost us more than $600 a month. Yikes. Between the pediatrician, the eye doctor, the dermatologist, the endocrinologist and the dentist, I am constantly struggling to keep up with what we owe and to who. So….I’m hoping that Simplee is going to make my life easier. I’ll keep you updated….

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Going, going, gone…..(My Omnipods)

05 Wednesday Oct 2011

Posted by alsmercer in cost, diabetes

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advocacy, Chronic Illness, cost, health insurance, living well with illness, type 1 diabetes, worries

 

 

 

 

 

 

 

 

I’ve got 2 pods left and then they are gone. I haven’t reordered another box yet because the mortgage, comcast and verizon bills are due and as a freelancer, I’m waiting on checks, as usual. I think I’ve been in a bit of denial too, ignoring the fact that I would soon run out of my box of 10 pods, and that as a result, need to go back on syringes. My other choice is to pull out the credit card and charge what we don’t have the actual money to pay for.

I am not a victim about this whole thing and  am not feeling sorry for myself. I am simply stating the ugly truth. Diabetes is an expensive disease. In my 26 years of living with diabetes, (my parents and) I have spent over $30,000 on medical supplies, doctor visits and hospital bills. And that’s WITH insurance. How is that fair? (I know, life isn’t fair, but still.) I have three kids and in order for me to be in the best health, I need the best and unfortunately most expensive tools. Something needs to change.

Dear Omnipod, it’s time to lower your costs. Period.

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The Cost of Diabetes, Dear Omnipod continues…

25 Sunday Sep 2011

Posted by alsmercer in cost, diabetes

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blood sugar management, Chronic Illness, cost, diabetes, omnipod, parenting, type 1 diabetes, women's health, worries

I broke down and ordered a box from Omnipod. It’s tough to say no to something on principal (expense) when it makes my life easier. When I stopped ordering the pods last spring, I owed Omnipod about $1000. I told myself I wouldn’t order any more pods until my bill was paid off and set up a payment plan of $50 a month. At that rate, it will take my 20 months to pay off what I owe, and I was only about 7 months in when I gave up and ordered another box of pods.

“Charge it!” I said, which reminded me of the days when I was young and went to the general store in our tiny village of Brownsville, Vermont and pick out a treat. My parents were in the background somewhere, and I would tell Rodney, the man/owner behind the counter to “Charge it.” The town was so small that everyone had a charge account, and I assumed that Mom and Dad would settle up with Rodney at the end of the month.

It was the seventies and Mom and Dad were hippies living in a 100 year old falling down house in the deep woods of Vermont and money was scarce. It made me feel rich to say those words at the counter, “Charge it,” because there was no one standing next to me pulling singles out of a bettered wallet or counting change onto the counter. I imagined that a ‘charge’ was unlimited and unrestricted by the reality of actual dollars.

When I used that familiar refrain on the phone with the customer service rep at Omnipod I didn’t feel rich, I felt relieved (because I knew that help for my blood sugars was on the way), but I also felt defeated. The big corporation had won, and I, the little consumer had not. I was getting what I wanted, more pods, but I was paying deeply with imaginary dollars, reaching into empty pockets to pay.

Our neighbors in Vermont were an older couple, Frank and Phoebe Phillips. Phoebe taught me piano for a while and Frank gave us rides up and down the dirt road in the winter on his horse and buggy. I remember one summer that trucks came to their house to dig a well. I don’t know what they did for water until that point, I’ll have to ask my parents, but I do remember that the trucks never seemed to reach water. They kept digging and digging and I knew from listening to my parents talk that the deeper our neighbors dug to get water, the more money they had to spend. But no one can go without water so they kept digging.

I went without water as long as I could. When the UPS guy dropped off the box of pods, I hurried to the porch, my three boys following in my trail, asking, “What is it mom?” They watched as I ripped open the packaging as if it was a new pair of shoes or a new dress. Surrounded by my boys,  I demonstrated how to fill the pod with insulin and stuck it onto my lower back. “Remember?” I said and Will and Miles nodded, “Oh yeah.” Reid on the other hand came over and touched the pod and said, “Mommy boo-boo.” His face was questioning. “Yes, boo-boo,” I repeated, pushing his hand away. But he was interested and kept touching it and kept saying, “Boo-boo, Mommy boo-boo.” I kissed the top of his head and nodded. “Yes Reid, this is Mommy’s boo-boo.” And it made me kind of sad. But then, the next morning, instead of waking up at 250, my blood sugar was 75. I reached water.

I can’t wait for the pump companies to figure out a way to make their equipment more affordable so in the meantime, I’ll keep digging.

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The Cost of Diabetes Continues…..Dear Omnipod:

15 Thursday Sep 2011

Posted by alsmercer in diabetes

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advocacy, Chronic Illness, cost, diabetes, insulin pump, omnipod, women's health, worries

Dear Omnipod,

I’m writing to you as a woman who has lived with type 1 diabetes for 26 years. For 24 of those years, I’ve injected myself (on average), four times a day. Shots in my arms, legs, butt cheeks and stomach have ended in bruises, blood and bumps. I injected myself because for a long time, there wasn’t any other option.

In the 90’s another choice became available (as long as you didn’t mind being connected to tubing that ended in a big, black medical device). As a young, vain, self-conscious college student, I did mind, and continued using shots. I eventually tried this kind of pump (I won’t name names) when I was pregnant with my 1st child because I wanted the best tools to manage my pregnancy, but after 3 days I took it off. I hated it. I hated being attached to something, hated that the pump made my “invisible” illness, visible.

Finally the Omnipod came on the market; a wireless pump with a remote control. My doctor gave me a trail pod and when I peeled the tape and stuck the pod on my lower back, I couldn’t believe how easy and inconspicuous it was. Sign me up, I told her! I loved the Omnipod. I loved how I didn’t have to think about shots, how I could adjust for exercise and my late afternoon lows. I loved how with 3 kids, it made managing my crazy life a little less hectic. There were parts I didn’t love of course…I didn’t love that it ripped off easily and couldn’t be put back on. I didn’t love that when I wore it anywhere other than my lower back it was very visible, but most of all, I didn’t love the cost.

My monthly bill for using the Omnipod was $160. And that wasn’t counting insulin. I’m writing in the past tense because I am no longer wearing the Omnipod. I stopped because I couldn’t afford it. My insurance covered 60% of the cost and I had to make up the rest. I am a freelance writer and published author and work from home. My husband works and thankfully we have his insurance but still, we struggle to make ends meet and $160 a month is a lot of money.

What a horrible choice to have to make: money or care.

That’s why I’m writing to you Omnipod. To ask you for help. To ask that you make your equipment more affordable for the thousands of people like me whose lives could be a little bit easier with your pump. Diabetes is an expensive disease, don’t make us choose between better management and paying our bills.

Thanks for listening, I (and many others) look forward to your response.

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