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Amy Stockwell Mercer

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Amy Stockwell Mercer

Tag Archives: illness

Long Road: From Cairo to Cape Town

10 Saturday Sep 2011

Posted by alsmercer in Uncategorized

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advocacy, bike tours, blood sugar management, Chronic Illness, diabetes, exercise, illness, inspiration

More from Jonny White (type 1 diabetic and all around impressive guy), from his 2006 bike tour:  Tour D’Afrique, which encompassed 7,500 miles of Africa.

He says, “Our weaknesses do not hold us back, they push us forward.” How powerful is that? That’s the kind of thing I want to post on my wall so I can see it every day. I want to feel that way more often.

And more words of wisdom….

“It’s clear that diabetes is not the road block but what set me on this road”

Powerfully inspiring. It makes me ask myself, how am I pushing forward?

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Running

16 Tuesday Aug 2011

Posted by alsmercer in Uncategorized

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diabetes, illness, parenting, running, women's health

This morning my seven year old said, “What happens when you don’t run mom?” We were on our way to my boy’s first day of school and I was running while they rode their bikes along the trail between our house and school.

“Well nothing I guess,” I said. “But I feel better when I do run.” I liked the idea that Miles thought something bad might happen to me if I didn’t run and wondered what he saw in his head….maybe he thought I would get sick, or blow up like the girl in Charlie and the Chocolate Factory or maybe like his Hex Bugs, I would loose my power if I didn’t “recharge” every day.

After dropping them at the front door of school, I continued through the neighborhood on my morning run and thought about the message I was sending my boys about daily exercise. Even though Miles’ question was funny, and I was glad that he knew running was important to me, I didn’t really want him to think something bad would happen to me if I didn’t run. I wanted my boys to know that I run because it makes me feel good, because it gives me 30 minutes to clear my head, 30 minutes to push myself, to sweat, to get my heart rate up, and to listen only to the pounding of my feet (instead of the screaching of my children!).

But maybe it wasn’t such a bad thing for them to be aware of the dangers of not running. Because in reality, running every day is part of what keeps my blood sugars close to normal, and is part of what keeps me motivated to eat well, and to be active throughout the day. I’d rather they think about exercise as a way to feel good, but I also am a big believer in being honest with my kids. I don’t want them to grow up unaware of scary things in life. I think it’s important to look at life as filled with pros and cons, light and dark, good and bad.

Their mom lives with diabetes, and I want them to know that I run because it makes me feel good, but also because it keeps the bad stuff at bay.

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Illness Memoirs…

07 Sunday Feb 2010

Posted by alsmercer in diabetes, posted by Amy S. Mercer

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illness, memoir, quest narratives

My MFA graduation is 4 months away and there is much work to be done! I am trying to pull my craft seminar together and thinking about illness memoirs…

Here is an interesting quote from the product description of the book,

The Wounded Storyteller: Body, Illness and and Ethics by Arthur W. Frank.

“Frank identifies three basic narratives of illness in restitution, chaos, and quest. Restitution narratives anticipate getting well again and give prominence to the technology of cure. In chaos narratives, illness seems to stretch on forever, with no respite or redeeming insights. Quest narratives are about finding that insight as illness is transformed into a means for the ill person to become someone new.”

I like the idea of Quest Narratives. Finding insight and becoming someone new. I feel kind of strange saying this, but I think after 25 years of living with diabetes, I am finally, through my writing, gaining insight and maybe even becoming someone new, someone who isn’t afraid to let the darkness (diabetes) show.

I cringe when I hear stories of illness, or “progressive illness narratives” that are too cheerful, too happy ever after, like, look at what a better person I’ve become, look at what I’ve learned from getting sick…because to me, there is no happy ending with diabetes-it’s more like a chaos narrative that goes on and on and on….but I do think it’s possible to have insight into the dark side of disease, to embrace our ‘Bitter Hearts.’

In the Desert by Stephen Crane

In the desert
I saw a creature, naked, bestial,
Who, squatting upon the ground,
Held his heart in his hands,
And ate of it.
I said, “Is it good, friend?”
“It is bitter – bitter”, he answered,
“But I like it
Because it is bitter,
And because it is my heart.”

Kaethe Weingarten also writes about the illness memoir, I like her water metaphor: “The progressive illness narrative orients people to cure.  Yet, if there is one thing I feel I have learned from an adult life lived inside an unreliable body, it is that care not cure will keep us floating in the ocean.  It is my hope that understanding the different kinds of constraints facing people with illness, with regard to the stories they can tell, will make it more likely that care will circulate among us.  I hope that this will create, metaphorically, a variety of rafts and docks and buoys and life preservers for us to cling to – together – in the illness-waters that we will all face at some time in our lives.”

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