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Amy Stockwell Mercer

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Amy Stockwell Mercer

Tag Archives: worries

Coping Skills…When Diabetes Gets You Down.

09 Thursday Feb 2012

Posted by alsmercer in diabetes

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blood sugar management, Chronic Illness, running, type 1 diabetes, worries

I like to think that I have pretty good coping skills. I’m lucky for so many reasons and when I’m having a bad day, I can always call my mom who makes me feel better. I’ve got all those things that matter: a loving and supportive husband, great kids, and my writing. I’d like to say that I’ve got my health too, because a lot of the time I feel pretty strong and healthy (when I’m running), but I won’t because I have a chronic illness, and on days like today, when my blood sugar won’t get below 250, I feel sick. I feel tired. I am short with my kids. I am stressed out about finances and don’t know if my blood sugar is high because I’m stressed, or I’m stressed because my blood sugar is high. On days like today it feels like a lose/lose, and there are no coping skills strong enough (exercise, red wine, coffee, reading, writing, fresh air, extra insulin….) to pull me through.

I hate to complain. I hate to feel sorry for myself. “There is always someone worse off than you,” my grandmother used to say, and I know she meant to make me feel better, but it didn’t. I want to curl up in bed and escape into a book, but I’ve got my boys who need dinner and baths and books before their day is done. I want a day off from Diabetes. I want to be able to eat without thinking, to run without worrying about being low, to wake up without worrying about being high, to run my hands over my skin and not feel a pump. One day off would be nice. Either that or some improved coping skills, because mine aren’t cutting it….

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Going, going, gone…..(My Omnipods)

05 Wednesday Oct 2011

Posted by alsmercer in cost, diabetes

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advocacy, Chronic Illness, cost, health insurance, living well with illness, type 1 diabetes, worries

 

 

 

 

 

 

 

 

I’ve got 2 pods left and then they are gone. I haven’t reordered another box yet because the mortgage, comcast and verizon bills are due and as a freelancer, I’m waiting on checks, as usual. I think I’ve been in a bit of denial too, ignoring the fact that I would soon run out of my box of 10 pods, and that as a result, need to go back on syringes. My other choice is to pull out the credit card and charge what we don’t have the actual money to pay for.

I am not a victim about this whole thing and  am not feeling sorry for myself. I am simply stating the ugly truth. Diabetes is an expensive disease. In my 26 years of living with diabetes, (my parents and) I have spent over $30,000 on medical supplies, doctor visits and hospital bills. And that’s WITH insurance. How is that fair? (I know, life isn’t fair, but still.) I have three kids and in order for me to be in the best health, I need the best and unfortunately most expensive tools. Something needs to change.

Dear Omnipod, it’s time to lower your costs. Period.

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The Cost of Diabetes, Dear Omnipod continues…

25 Sunday Sep 2011

Posted by alsmercer in cost, diabetes

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blood sugar management, Chronic Illness, cost, diabetes, omnipod, parenting, type 1 diabetes, women's health, worries

I broke down and ordered a box from Omnipod. It’s tough to say no to something on principal (expense) when it makes my life easier. When I stopped ordering the pods last spring, I owed Omnipod about $1000. I told myself I wouldn’t order any more pods until my bill was paid off and set up a payment plan of $50 a month. At that rate, it will take my 20 months to pay off what I owe, and I was only about 7 months in when I gave up and ordered another box of pods.

“Charge it!” I said, which reminded me of the days when I was young and went to the general store in our tiny village of Brownsville, Vermont and pick out a treat. My parents were in the background somewhere, and I would tell Rodney, the man/owner behind the counter to “Charge it.” The town was so small that everyone had a charge account, and I assumed that Mom and Dad would settle up with Rodney at the end of the month.

It was the seventies and Mom and Dad were hippies living in a 100 year old falling down house in the deep woods of Vermont and money was scarce. It made me feel rich to say those words at the counter, “Charge it,” because there was no one standing next to me pulling singles out of a bettered wallet or counting change onto the counter. I imagined that a ‘charge’ was unlimited and unrestricted by the reality of actual dollars.

When I used that familiar refrain on the phone with the customer service rep at Omnipod I didn’t feel rich, I felt relieved (because I knew that help for my blood sugars was on the way), but I also felt defeated. The big corporation had won, and I, the little consumer had not. I was getting what I wanted, more pods, but I was paying deeply with imaginary dollars, reaching into empty pockets to pay.

Our neighbors in Vermont were an older couple, Frank and Phoebe Phillips. Phoebe taught me piano for a while and Frank gave us rides up and down the dirt road in the winter on his horse and buggy. I remember one summer that trucks came to their house to dig a well. I don’t know what they did for water until that point, I’ll have to ask my parents, but I do remember that the trucks never seemed to reach water. They kept digging and digging and I knew from listening to my parents talk that the deeper our neighbors dug to get water, the more money they had to spend. But no one can go without water so they kept digging.

I went without water as long as I could. When the UPS guy dropped off the box of pods, I hurried to the porch, my three boys following in my trail, asking, “What is it mom?” They watched as I ripped open the packaging as if it was a new pair of shoes or a new dress. Surrounded by my boys,  I demonstrated how to fill the pod with insulin and stuck it onto my lower back. “Remember?” I said and Will and Miles nodded, “Oh yeah.” Reid on the other hand came over and touched the pod and said, “Mommy boo-boo.” His face was questioning. “Yes, boo-boo,” I repeated, pushing his hand away. But he was interested and kept touching it and kept saying, “Boo-boo, Mommy boo-boo.” I kissed the top of his head and nodded. “Yes Reid, this is Mommy’s boo-boo.” And it made me kind of sad. But then, the next morning, instead of waking up at 250, my blood sugar was 75. I reached water.

I can’t wait for the pump companies to figure out a way to make their equipment more affordable so in the meantime, I’ll keep digging.

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The Cost of Diabetes, Dear Omnipod, Day 2…

19 Monday Sep 2011

Posted by alsmercer in cost, diabetes

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blood sugar management, Chronic Illness, diabetes, health insurance, omnipod, women's health, worries

Dear Omnipod,

I woke up this morning with a blood sugar of 300. Do you know what that feels like? It feels like your legs are filled with sand, your mouth is dry and you are thirsty, so thirsty that you stand in the kitchen and gulp water from your SIGG water bottle, refilling it again and again. If I were to use my husband’s golf analogy, it would be like starting a round of golf with a triple bogie. Tough to recover.

What happened you ask? I wish I knew. I went to bed at 98. I ate a low carb dinner. I ate a graham cracker before bed which is about 15 carbs and I didn’t cover it  so maybe that had something to do with it, but I’m not convinced. This has been happening for a few weeks, maybe even a month.

If I had a pump, I could set it up to increase my basal in the middle of the night. But I don’t have  a pump. I stopped buying the pump last spring because it was too much money.

The Omnipod costs approximately $150 a month. (My insurance covers 60% of the cost.) That’s $1800 a year. My health is invaluable, I know that, but when we’re struggling to pay the bills, it’s tough to find an extra $160 each month.

The Omnipod is a fantastic tool for people with diabetes. It’s wireless which really appeals to me as a woman who doesn’t like to wear durable medical equipment if she doesn’t have to. It’s waterproof and easy to use. But it’s expensive. Why is your pump so expensive?

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